LRB-1493/1
SWB:kjf:jf
2015 - 2016 LEGISLATURE
February 27, 2015 - Introduced by Representatives Novak, Berceau, Billings,
Bowen, Brostoff, Danou, Hesselbein, Johnson, Kahl, Kessler, Kitchens,
Kleefisch, Meyers, Milroy, Ohnstad, Riemer, Sargent, Sinicki, Spiros,
Subeck, Tauchen, C. Taylor, Tranel, VanderMeer, Wachs and Zamarripa,
cosponsored by Senators Lassa, L. Taylor, C. Larson, Ringhand, Wirch,
Miller, Risser and Hansen. Referred to Committee on Health.
AB65,1,2 1An Act to amend 253.13 (1); and to create 253.13 (1g) of the statutes; relating
2to:
newborn screening for certain lysosomal storage disorders.
Analysis by the Legislative Reference Bureau
Under current law, the attending physician or nurse-midwife must ensure that
every infant born undergoes testing for certain congenital and metabolic disorders
prior to the infant's discharge from the hospital or maternity home. For infants born
elsewhere, the attending physician, nurse-midwife, or other birth attendant must
ensure that the infant is tested within a week of birth. As authorized by current law,
the Department of Health Services (DHS) specifies by rule the congenital and
metabolic disorders for which newborn infants are to be screened. Current law
allows an exception to the testing requirement if the parents or legal guardian object
on the basis of a conflict with religious tenets and practices or with their personal
convictions.
This bill requires that, in addition to the other congenital and metabolic
disorders for which testing is currently required under DHS rules, the attending
physician, nurse-midwife, or in certain circumstances, other birth attendant, must
ensure that every infant born undergoes testing for certain lysosomal storage
disorders, specifically, globoid cell leukodystrophy, also known as Krabbe disease;
Fabry disease, Pompe disease; Niemann-Pick disease; Gaucher disease, and Hurler
syndrome, also known as mucopolysaccharidosis type I (MPS I). For infants born in
a hospital or maternity home, the attending physician or nurse-midwife must
ensure this testing is completed before the infant is discharged from the hospital or
within one week of birth, if the infant has not yet been discharged. For births

occurring outside a hospital or maternity home setting, the attending physician,
nurse-midwife, or other birth attendant must ensure testing is done within one week
of birth. The parental objection exemption under current law also applies to the
testing required under this bill.
For further information see the state fiscal estimate, which will be printed as
an appendix to this bill.
The people of the state of Wisconsin, represented in senate and assembly, do
enact as follows:
AB65,1 1Section 1. 253.13 (1) of the statutes is amended to read:
AB65,2,82 253.13 (1) Tests; requirements. The attending physician or nurse licensed
3under s. 441.15 shall cause every infant born in each hospital or maternity home,
4prior to its the infant's discharge therefrom, to be subjected to tests for congenital and
5metabolic disorders, as specified in rules promulgated by the department. If the
6infant is born elsewhere than in a hospital or maternity home, the attending
7physician, nurse licensed under s. 441.15, or birth attendant who attended the birth
8shall cause the infant, within one week of birth, to be subjected to these tests.
AB65,2 9Section 2. 253.13 (1g) of the statutes is created to read:
AB65,2,1510 253.13 (1g) Screening for certain lysosomal storage disorders. (a) In
11addition to the testing required under sub. (1), the attending physician or nurse
12licensed under s. 441.15 shall cause every infant born in each hospital or maternity
13home, prior to the infant's discharge or within one week of the birth if the infant has
14not yet been discharged, to be subjected to tests for the following lysosomal storage
15disorders:
AB65,2,1616 1. Globoid cell leukodystrophy, also known as Krabbe disease.
AB65,2,1717 2. Fabry disease.
AB65,2,1818 3. Pompe disease.
AB65,2,1919 4. Niemann-Pick disease.
AB65,3,1
15. Gaucher disease.
AB65,3,22 6. Hurler syndrome, also known as mucopolysaccharidosis type I.
AB65,3,63 (b) If the infant is born elsewhere than in a hospital or maternity home, the
4attending physician, nurse licensed under s. 441.15, or birth attendant who attended
5the birth shall cause the infant, within one week of birth, to be subjected to the tests
6under par. (a).
AB65,3,137 (c) No later than June 1, 2018, and every 2 years thereafter, the department
8shall evaluate the appropriateness of mandatory newborn testing for lysosomal
9storage disorders in addition to those listed under par. (a). If the department
10determines that testing for one or more lysosomal storage disorders in addition to
11those listed under par. (a) is appropriate, the department, under the authority
12granted under sub. (1), may promulgate rules adding to the list of disorders for which
13newborn testing is required.
AB65,3 14Section 3. Effective date.
AB65,3,1615 (1) This act takes effect on the first day of the 3rd month beginning after
16publication.
AB65,3,1717 (End)
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