SJR46: Joint Resolution Text

LRB-3296/1

RAC:kjf

2017 - 2018 LEGISLATURE

2017 Senate JOINT RESOLUTION 46

April 27, 2017 - Introduced by Senator Darling. Referred to Committee on Senate Organization.

SJR46,1,1 Relating to: proclaiming May 5, 2017, as Cri du Chat Awareness Day in Wisconsin.

SJR46,1,4 Whereas, each year in the United States alone, approximately 50 to 60 children are born with 5P Minus Syndrome, also known as Cat Cry Syndrome or Cri du Chat Syndrome; and

SJR46,1,7 Whereas, some common characteristics of Cri du Chat Syndrome at birth are a high pitched cry, low birth weight, poor muscle tone, microcephaly, and potential medical complications; and

SJR46,1,9 Whereas, “5p" is a term used by geneticists to describe a portion of chromosome number five that is missing in these individuals; and

SJR46,1,12 Whereas, children born with this rare genetic defect will most likely require ongoing support from a team of therapists and medical and educational professionals to help the child achieve his or her maximum potential; and

SJR46,2,2 Whereas, the 5P Minus Society of North America, the national support group for individuals with Cri du Chat Syndrome, along with support organizations from around the world are proud to announce that May 1-7, 2017, will be designated as International Cri du Chat Syndrome Awareness Week; and

SJR46,2,4 Whereas, May 5, 2017, has been designated internationally as Cri du Chat Syndrome Day; and

SJR46,2,7 Whereas, the 5P Minus Society serves as a state and national resource to provide comprehensive information and support for families, caregivers, providers, and educators; and

SJR46,2,10 Whereas, there are many individuals with Cri du Chat Syndrome living in Wisconsin who are members of the 5p Minus Society and over 1,200 families in the country; and

SJR46,2,13 Whereas, the goals of Cri du Chat Awareness Week are to end the outdated misinformation given to families when their child receives a diagnosis and to raise awareness for Cri du Chat Syndrome on a large scale; and

SJR46,2,15 Whereas, the 5 P Minus Society's annual national conference is being held this year in Milwaukee, Wisconsin, on August 3-6, 2017; now, therefore, be it

SJR46,2,18 Resolved by the senate, the assembly concurring, That the members of the Wisconsin legislature hereby recognize May 5, 2017, as Cri du Chat Awareness Day in Wisconsin; and, be it further

SJR46,2,20 Resolved, That the senate chief clerk shall provide a copy of this resolution to the 5P Minus Society.

SJR46,2,21 (End)