SR17: Resolution Text

LRB-3163/2

DAK:kmg:pg

2003 - 2004 LEGISLATURE

2003 Senate RESOLUTION 17

September 23, 2003 - Introduced by Senators Roessler, Schultz, Cowles, Lazich, Kanavas, Lassa and Breske. Referred to Committee on Senate Organization.

SR17,1,1 Relating to: tuberous sclerosis.

SR17,1,3 Whereas, at least 2 children born each day will be affected with tuberous sclerosis; and

SR17,1,5 Whereas, nearly 1,000,000 people worldwide are known to have tuberous sclerosis; and

SR17,1,6 Whereas, tuberous sclerosis affects all races and ethnic groups equally; and

SR17,1,8 Whereas, tuberous sclerosis is caused by either an inherited autosomal disorder or by a spontaneous mutation; and

SR17,1,11 Whereas, when tuberous sclerosis is genetically transmitted as an autosomal dominant disorder, a child with a parent with the gene will have a 50% chance of inheriting the disease; and

SR17,1,13 Whereas, two-thirds of the cases of tuberous sclerosis are believed to be a result of spontaneous mutation, although the cause of such mutations is a mystery; and

SR17,1,15 Whereas, diagnosis takes an average of 90 days with consultation of at least 3 specialists; and

SR17,2,1 Whereas, tuberous sclerosis is the largest known genetic cause of epilepsy; and

SR17,2,3 Whereas, tuberous sclerosis is now the 2nd largest identifiable genetic cause of autism; and

SR17,2,5 Whereas, tuberous sclerosis frequently goes undiagnosed because of the obscurity of the disease and the mild form that the symptoms may take; and

SR17,2,9 Whereas, the Wisconsin senate as an institution and members of the Wisconsin senate individually are in unique positions to help raise public awareness about the need for increased funding for research, detection, and treatment of tuberous sclerosis and to support the fight against tuberous sclerosis; now, therefore, be it

SR17,2,13 Resolved by the senate, That the members of the Wisconsin senate support the taking of an active role by all Americans in the fight against tuberous sclerosis by all means available, including early and complete clinical testing and investigating family histories; and, be it further

SR17,2,17 Resolved, That the members of the Wisconsin senate recognize and applaud the role played by national and community organizations and health care providers in promoting awareness of the importance of early diagnosis, testing, and ongoing screening for tuberous sclerosis; and, be it further

SR17,2,20 Resolved, That the members of the Wisconsin senate recognize that it is necessary in Wisconsin to raise awareness about the importance of the early detection of, and proper treatment for, tuberous sclerosis; and, be it further

SR17,2,24 Resolved, That the members of the Wisconsin senate acknowledge that Wisconsinites as a state and Americans as a nation need to continue to consider ways to improve access to, and the quality of, health care services for detecting and treating tuberous sclerosis.

SR17,2,25 (End)