Assembly

Record of Committee Proceedings

Committee on Health

Assembly Bill 744

Relating to: rare disease advisory council.

By Representatives Dittrich, Loudenbeck, Sinicki, Thiesfeldt, Shelton, Murphy and Duchow; cosponsored by Senators Jagler and Cowles.

December 07, 2021     Referred to Committee on Health

January 11, 2022         Public Hearing Held

Present:       (15)      Representative Sanfelippo; Representatives Summerfield, Wichgers, VanderMeer, Murphy, Magnafici, Dittrich, Rozar, Moses, Cabral-Guevara, Subeck, Riemer, Anderson, Vining and S. Rodriguez.

Absent:       (0)        None.

Excused:     (1)        Representative Skowronski.

Appearances For

·      State Rep. Barb Dittrich - 38th District

·      Dr. Sheldon Garrison

·      Danielle Baxter - GLHF

·      Jordan Lamb - Otsuka

Appearances Against

·      None.

Appearances for Information Only

·      None.

Registrations For

·      Tony Langenohl - Horizon Therapeutics

·      Tony Langenohl - Pfizer

·      Tony Langenohl - Vertex

·      Rob Gundermann - Coalition of WI Aging and Health Groups

·      Sara Sahli - American Cancer Society Cancer Action Network

·      Mia May

·      Caleb Ganasky

·      Alessandra Lajeunesse

·      Leela Shah

·      Ryan Freurd

·      Jordan Lamb - BioForward

·      Alyss Patel - National Organization of Rare Disorders

·      Danyelle Sun

·      Lori Knutson

·      Kerri Engebrecht

·      Dee George - Novartis

·      Lilly Melander - The Biotechnology Innovation Organization

·      State Senator John Jagler - 13th District

Registrations Against

·      None.

Registrations for Information Only

·      HJ Waukau

January 12, 2022         Executive Session Held

Present:       (15)      Representative Sanfelippo; Representatives Summerfield, Wichgers, VanderMeer, Murphy, Magnafici, Dittrich, Rozar, Moses, Cabral-Guevara, Subeck, Riemer, Anderson, Vining and S. Rodriguez.

Absent:       (0)        None.

Excused:     (1)        Representative Skowronski.

March 10, 2022           Failed to pass pursuant to Senate Joint Resolution 1

______________________________

Joshua Hoisington

Committee Clerk