Senate
Record of Committee Proceedings
Committee on Health
For the Public Hearing on 06/4/2025 01:00 PM
Senate Bill 145
Relating to: the procedure for adding federal newborn screening recommendations to the state-required newborn screenings, granting rule-making authority, and providing an exemption from emergency rule procedures.
By Senators Jagler, Feyen, Dassler-Alfheim, James, L. Johnson, Spreitzer, Testin and Wall; cosponsored by Representatives Dittrich, Duchow, Andraca, Knodl, Murphy, Mursau, Sinicki, Stubbs and Subeck.
March 21, 2025 Referred to Committee on Health
Present: (5) Senator Cabral-Guevara; Senators Testin, James, Smith and Drake.
Absent: (0) None.
Excused: (0) None.
Appearances For
· Kari Lato - Rare and Ready Coalition
· Mr Dylan Simon - Every Life Foundation for Rare Diseases
· CEO Kimberly Haugstad - Wisconsin Rare Disease Alliance
· Board Member Katie Moureau - WI Rare
· Representative Barbara Dittrich - 99th Assembly District
· State Senator John Jagler - Senate District 13
Appearances Against
· None.
Appearances for Information Only
· None.
Registrations For
· Intern Jon Haugstad - Wisconsin Rare
· Jordan Lamb - Sanofi
· Jordan Lamb - Alexion Pharmaceuticals
Registrations Against
· None.
Registrations for Information Only
· Syed Abbas - Wisconsin Department of Health Services
______________________________
Michael Moscicke
Committee Clerk
