AB185-ASA1, s. 7 4Section 7. 253.12 (1) (a) (intro.) of the statutes is amended to read:
AB185-ASA1,5,85 253.12 (1) (a) (intro.) "Birth defect" means any of the following conditions
6affecting a stillbirth or an infant or child that occurs prior to or at birth and that
7requires medical or surgical intervention or interferes with normal growth and
8development:
AB185-ASA1, s. 8 9Section 8. 253.12 (1) (a) 1. of the statutes is amended to read:
AB185-ASA1,5,1110 253.12 (1) (a) 1. A structural malformation, deformation, disruption, or
11dysplasia.
AB185-ASA1, s. 9 12Section 9. 253.12 (1) (b) of the statutes is renumbered 253.12 (1) (cm) and
13amended to read:
AB185-ASA1,5,1714 253.12 (1) (cm) "Pediatric specialty clinic" means a clinic that is located in a
15hospital or is a freestanding clinic,
the primary purpose of which is to provide
16pediatric specialty diagnostic, counseling and medical management services to
17persons with birth defects by a physician subspecialist.
AB185-ASA1, s. 10 18Section 10. 253.12 (1) (e) of the statutes is created to read:
AB185-ASA1,5,2119 253.12 (1) (e) "Research" means a systematic study through scientific inquiry
20for the purpose of expanding a field of knowledge, including environmental or
21epidemiological research or special studies.
AB185-ASA1, s. 11 22Section 11. 253.12 (2) (a) (intro.) of the statutes is amended to read:
AB185-ASA1,5,2523 253.12 (2) (a) (intro.) Except as provided in par. (b), all of the following shall
24report in the manner prescribed by the department under sub. (3) (a) 3. a birth defect
25in a stillbirth or an infant or child:
AB185-ASA1, s. 12
1Section 12. 253.12 (2) (a) 3. of the statutes is created to read:
AB185-ASA1,6,42 253.12 (2) (a) 3. The division of the department that deals with vital statistics,
3with respect to the information received under s. 69.20 (3) (b) 3. or available under
4s. 69.20 (3) (d).
AB185-ASA1, s. 13 5Section 13. 253.12 (2) (a) 4. of the statutes is created to read:
AB185-ASA1,6,76 253.12 (2) (a) 4. The entity under contract under s. 153.05 (2m) (a), with respect
7to public use data files under s. 153.46 (1) (b).
AB185-ASA1, s. 14 8Section 14. 253.12 (2) (am) of the statutes is amended to read:
AB185-ASA1,6,119 253.12 (2) (am) Any hospital in which a birth defect is diagnosed in a stillbirth
10or
an infant or child or treatment is provided to the infant or child may report the
11birth defect in the manner prescribed by the department under sub. (3) (a) 3.
AB185-ASA1, s. 15 12Section 15. 253.12 (2) (b) of the statutes is amended to read:
AB185-ASA1,6,1613 253.12 (2) (b) No person specified under par. (a) need report under par. (a) if
14that person knows that another person specified under par. (a) or (am) has already
15reported to the department the required information with respect to the same birth
16defect of the same stillbirth or infant or child.
AB185-ASA1, s. 16 17Section 16. 253.12 (2) (d) of the statutes is repealed and recreated to read:
AB185-ASA1,6,2418 253.12 (2) (d) If the parent or guardian of a stillbirth or an infant or child for
19whom a report is made under par. (a) decides, after having been informed by a
20physician or a physician's designee of the intent of the system under this section, not
21to consent to the release of identifying information concerning the stillbirth or infant
22or child and signs the form specified in sub. (5) (c), the department may not require
23a person specified under par. (a) 1., 2., or 3. to report information identifying the
24stillbirth or infant or child.
AB185-ASA1, s. 17 25Section 17. 253.12 (2) (e) of the statutes is amended to read:
AB185-ASA1,7,3
1253.12 (2) (e) If the address of an infant or child or the place of delivery of a
2stillbirth
for whom a report is made under par. (a) is included in the report, the
3department shall encode the address to refer to the same geographical location.
AB185-ASA1, s. 18 4Section 18. 253.12 (3) (a) 1. (intro.) of the statutes is amended to read:
AB185-ASA1,7,95 253.12 (3) (a) 1. (intro.) Establish and maintain an up-to-date registry that
6documents the diagnosis in this state of any stillbirth or infant or child who has a
7birth defect, regardless of the residence of the infant or child or place of delivery of
8the stillbirth
. The department shall include in the registry information that will
9facilitate all of the following:
AB185-ASA1, s. 19 10Section 19. 253.12 (3) (a) 1. c. of the statutes is amended to read:
AB185-ASA1,7,1911 253.12 (3) (a) 1. c. Development of primary preventive strategies to decrease
12the occurrence of birth defects without increasing abortions. The department may
13contract with an entity that the department determines is qualified to perform the
14development required under this subd. 1. c. Any material released by the
15department to the entity under the contract may be used only for the performance
16of this development and may not be used by an insurer, as defined in s. 600.03 (27),
17to limit or deny health care coverage to an individual. The entity under contract may
18not under this subd. 1. c. reveal information that may identify the subject of a report
19made under sub. (2).
AB185-ASA1, s. 20 20Section 20. 253.12 (3) (c) of the statutes is amended to read:
AB185-ASA1,7,2321 253.12 (3) (c) The department shall, not more than 10 years from the date of
22receipt of a report under sub. (2), delete from any file of the department the name of
23a stillbirth or an infant or child that is contained in the report.
AB185-ASA1, s. 21 24Section 21. 253.12 (4) (a) of the statutes is amended to read:
AB185-ASA1,8,9
1253.12 (4) (a) Make recommendations to the department regarding the
2establishment of a registry that documents the diagnosis in the state of a stillbirth
3or
an infant or child who has a birth defect, as required under sub. (3) (a) 1. and
4regarding the rules that the department is required to promulgate under sub. (3) (a)
52. and 3. on the birth defects to be reported under sub. (2) and on the general content
6and format of the report under sub. (2) and procedures for submitting the report. The
7council shall also make recommendations regarding the content of a report that,
8because of the application of sub. (2) (d), does not contain the name of the subject of
9the report.
AB185-ASA1, s. 22 10Section 22. 253.12 (5) (a) 1. of the statutes is amended to read:
AB185-ASA1,8,1211 253.12 (5) (a) 1. The parent or guardian of a stillbirth or an infant or child for
12whom a report is made under sub. (2).
AB185-ASA1, s. 23 13Section 23. 253.12 (5) (a) 2. of the statutes is amended to read:
AB185-ASA1,8,2214 253.12 (5) (a) 2. A local health officer, a local birth-to-3 coordinator or an
15agency under contract with the department to administer the children with special
16health care needs program, upon receipt of a written request and informed written
17consent from the parent or guardian of the infant or child
under the requirements
18of subs. (2) (d) and (5m)
. The local health officer may disclose information received
19under this subdivision only to the extent necessary to render and coordinate services
20and follow-up care for the infant or child or to conduct a health, demographic or
21epidemiological investigation. The local health officer shall destroy all information
22received under this subdivision within one year after receiving it.
AB185-ASA1, s. 24 23Section 24. 253.12 (5) (a) 4. of the statutes is amended to read:
AB185-ASA1,9,924 253.12 (5) (a) 4. A representative of a federal or state agency upon written
25request and to the extent that the information is necessary to perform a legally

1authorized function of that agency, including investigation of causes, mortality,
2methods of prevention and early intervention, treatment or care of birth defects,
3associated diseases or disabilities. The information may not include the name or
4address of an infant or child or the place of delivery of a stillbirth with a condition
5reported under sub. (2). The department shall notify the parent or guardian of a
6stillbirth or
an infant or child about whom information is released under this
7subdivision, of the release. The representative of the federal or state agency may
8disclose information received under this paragraph only as necessary to perform the
9legally authorized function of that agency for which the information was requested.
AB185-ASA1, s. 25 10Section 25. 253.12 (5) (c) of the statutes is created to read:
AB185-ASA1,9,1511 253.12 (5) (c) By July 1, 2009, the department shall prescribe and distribute,
12and periodically distribute thereafter, to pediatric speciality clinics and local health
13departments copies of a form to be used by the parent or guardian of a stillbirth or
14an infant or child for whom a report is made under sub. (2) (a) in indicating any of
15the following:
AB185-ASA1,9,1716 1. Refusal under sub. (2) (d) by the parent or guardian to consent to the release
17of identifying information concerning the stillbirth or infant or child.
AB185-ASA1,9,1918 2. The decision under sub. (5m) by the parent or guardian to remove from the
19system any identifying information entered for the stillbirth or infant or child.
AB185-ASA1, s. 26 20Section 26. 253.12 (5m) of the statutes is created to read:
AB185-ASA1,9,2521 253.12 (5m) Removal of identifying information. If the parent or guardian
22of a stillbirth or an infant or child for whom a report is made under sub. (2) (a) decides
23to withdraw consent to the release of identifying information concerning the
24stillbirth or infant or child, the parent or guardian may request from the local health
25department or the stillbirth's or infant's or child's physician the form specified in sub.

1(5) (c). If the parent or guardian decides, after having been informed by the
2stillbirth's or infant's or child's physician or physician's designee of the information
3contained in the system under this section, and signs the form, the local health
4department, physician, or physician's designee shall forward the form to the division
5of the department that deals with public health. On receipt of the signed form, the
6department shall remove from the system under this section any information
7identifying the stillbirth or infant or child.
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