AB1098, s. 13 25Section 13. 253.12 (2) (a) (intro.) of the statutes is amended to read:
AB1098,6,3
1253.12 (2) (a) (intro.) Except as provided in par. (b), all of the following shall
2report in the manner prescribed by the department under sub. (3) (a) 3. a birth defect
3in a stillborn human or an infant or child:
AB1098, s. 14 4Section 14. 253.12 (2) (a) 3. of the statutes is created to read:
AB1098,6,75 253.12 (2) (a) 3. The division of the department that deals with vital statistics,
6with respect to the information received under s. 69.20 (3) (b) 3. or available under
7s. 69.20 (3) (d).
AB1098, s. 15 8Section 15. 253.12 (2) (a) 4. of the statutes is created to read:
AB1098,6,109 253.12 (2) (a) 4. The entity under contract under s. 153.05 (2m) (a), with respect
10to public use data files under s. 153.46 (1) (b).
AB1098, s. 16 11Section 16. 253.12 (2) (am) of the statutes is amended to read:
AB1098,6,1412 253.12 (2) (am) Any hospital in which a birth defect is diagnosed in a stillborn
13human or
an infant or child or treatment is provided to the infant or child may report
14the birth defect in the manner prescribed by the department under sub. (3) (a) 3.
AB1098, s. 17 15Section 17. 253.12 (2) (b) of the statutes is amended to read:
AB1098,6,1916 253.12 (2) (b) No person specified under par. (a) need report under par. (a) if
17that person knows that another person specified under par. (a) or (am) has already
18reported to the department the required information with respect to the same birth
19defect of the same stillborn human or infant or child.
AB1098, s. 18 20Section 18. 253.12 (2) (d) of the statutes is repealed and recreated to read:
AB1098,7,221 253.12 (2) (d) If the parent or guardian of a stillborn human or an infant or child
22for whom a report is made under par. (a) decides, after having been informed by a
23physician or a physician's designee of the intent of the system under this section, not
24to consent to the release of identifying information concerning the stillborn human
25or infant or child and signs the form specified in sub. (5) (c), the department may not

1require a person specified under par. (a) 1., 2., or 3. to report information identifying
2the stillborn human or infant or child.
AB1098, s. 19 3Section 19. 253.12 (2) (e) of the statutes is amended to read:
AB1098,7,64 253.12 (2) (e) If the address of an infant or child or the place of delivery of a
5stillborn human
for whom a report is made under par. (a) is included in the report,
6the department shall encode the address to refer to the same geographical location.
AB1098, s. 20 7Section 20. 253.12 (3) (a) 1. (intro.) of the statutes is amended to read:
AB1098,7,128 253.12 (3) (a) 1. (intro.) Establish and maintain an up-to-date registry that
9documents the diagnosis in this state of any stillborn human or infant or child who
10has a birth defect, regardless of the residence of the infant or child or place of delivery
11of the stillborn human
. The department shall include in the registry information
12that will facilitate all of the following:
AB1098, s. 21 13Section 21. 253.12 (3) (a) 1. c. of the statutes is amended to read:
AB1098,7,1614 253.12 (3) (a) 1. c. Development of primary preventive strategies to decrease
15the occurrence of birth defects without increasing abortions. The department may
16contract with an entity to perform the development required under this subd. 1. c.
AB1098, s. 22 17Section 22. 253.12 (3) (c) of the statutes is amended to read:
AB1098,7,2018 253.12 (3) (c) The department shall, not more than 10 years from the date of
19receipt of a report under sub. (2), delete from any file of the department the name of
20a stillborn human or an infant or child that is contained in the report.
AB1098, s. 23 21Section 23. 253.12 (4) (a) of the statutes is amended to read:
AB1098,8,522 253.12 (4) (a) Make recommendations to the department regarding the
23establishment of a registry that documents the diagnosis in the state of a stillborn
24human or
an infant or child who has a birth defect, as required under sub. (3) (a) 1.
25and regarding the rules that the department is required to promulgate under sub.

1(3) (a) 2. and 3. on the birth defects to be reported under sub. (2) and on the general
2content and format of the report under sub. (2) and procedures for submitting the
3report. The council shall also make recommendations regarding the content of a
4report that, because of the application of sub. (2) (d), does not contain the name of the
5subject of the report.
AB1098, s. 24 6Section 24. 253.12 (5) (a) 1. of the statutes is amended to read:
AB1098,8,87 253.12 (5) (a) 1. The parent or guardian of a stillborn human or an infant or
8child for whom a report is made under sub. (2).
AB1098, s. 25 9Section 25. 253.12 (5) (a) 2. of the statutes is amended to read:
AB1098,8,1810 253.12 (5) (a) 2. A local health officer, a local birth-to-3 coordinator or an
11agency under contract with the department to administer the children with special
12health care needs program, upon receipt of a written request and informed written
13consent from the parent or guardian of the infant or child
under the requirements
14of subs. (2) (d) and (5m)
. The local health officer may disclose information received
15under this subdivision only to the extent necessary to render and coordinate services
16and follow-up care for the infant or child or to conduct a health, demographic or
17epidemiological investigation. The local health officer shall destroy all information
18received under this subdivision within one year after receiving it.
AB1098, s. 26 19Section 26. 253.12 (5) (a) 4. of the statutes is amended to read:
AB1098,9,620 253.12 (5) (a) 4. A representative of a federal or state agency upon written
21request and to the extent that the information is necessary to perform a legally
22authorized function of that agency, including investigation of causes, mortality,
23methods of prevention and early intervention, treatment or care of birth defects,
24associated diseases or disabilities. The information may not include the name or
25address of an infant or child or the place of delivery of a stillborn human with a

1condition reported under sub. (2). The department shall notify the parent or
2guardian of a stillborn human or an infant or child about whom information is
3released under this subdivision, of the release. The representative of the federal or
4state agency may disclose information received under this paragraph only as
5necessary to perform the legally authorized function of that agency for which the
6information was requested.
AB1098, s. 27 7Section 27. 253.12 (5) (c) of the statutes is created to read:
AB1098,9,118 253.12 (5) (c) By January 1, 2007, the department shall prescribe and
9distribute to pediatric speciality clinics and local health departments copies of a form
10to be used by the parent or guardian of a stillborn human or an infant or child for
11whom a report is made under sub. (2) (a) in indicating any of the following:
AB1098,9,1312 1. Refusal under sub. (2) (d) by the parent or guardian to consent to the release
13of identifying information concerning the stillborn human or infant or child.
AB1098,9,1614 2. The decision under sub. (5m) by the parent or guardian to remove from the
15system any identifying information entered for the stillborn human or infant or
16child.
AB1098, s. 28 17Section 28. 253.12 (5m) of the statutes is created to read:
AB1098,9,2518 253.12 (5m) Removal of identifying information. If the parent or guardian
19of a stillborn human or an infant or child for whom a report is made under sub. (2)
20(a) decides to withdraw consent to the release of identifying information concerning
21the stillborn human or infant or child, the parent or guardian may request from the
22local health department or the stillborn human's or infant's or child's physician the
23form specified in sub. (5) (c). If the parent or guardian decides, after having been
24informed by the stillborn human's or infant's or child's physician or physician's
25designee of the information contained in the system under this section, and signs the

1form, the local health department, physician, or physician's designee shall forward
2the form to the division of the department that deals with public health. On receipt
3of the signed form, the department shall remove from the system under this section
4any information identifying the stillborn human or infant or child.
AB1098,10,55 (End)
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